By Radley Balko; Senior Writer and Investigative Reporter, The Huffington Post
"I don't want to be doped up all the time," says Mary Maston. "I want to be able to function. I have to be able to function for my kids. But the pain prevents me from doing so."
In 2008, Maston, 37, was diagnosed with Medullary Sponge Kidney, a congenital disorder that causes her to form large, painful kidney stones. She has since had three lithotripsy surgeries, all of which she says were unsuccessful, and has had to be hospitalized to drain the blood from her kidneys. She has also been diagnosed with stage two Chronic Kidney Disease.
For the first few years after her diagnosis, Maston lived in Tennessee. There, she says, "my doctor was pretty good about writing me a prescription for pain medication when I needed one." But in March 2011, Maston and her family moved to Florida to be closer to her husband's family, and her condition worsened. Florida doctors, she says, were much less willing to prescribe the level of medication she needed. In September, the daily pain from her condition forced her to quit her job. She says she's been to the emergency room seven times in the last eighth months, all due to overwhelming pain.
"I always wait until the last possible second, until the pain is so unbearable I am in tears and can't walk," Maston says. "I have a background in Human Resources, so I know [ER visits] drive up everyone's insurance costs. My husband literally carries me to the car to get me to the ER. This is no way to live."
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